Wednesday, March 25, 2009

When it rains it pours

Hi Everybody,

Yesterday was another milestone for us. Sarah had her fourth chemo treatment, which means she's a third of the way through. This was both exciting and daunting all at the same time. It is nice to know that we have traveled a significant distance, but the road ahead is long and full of uncertainty. Let me back up for a moment and get you all up to speed.

The last treatment was rough. Sarah was dealing with the increasing pain of the $$$ shot, along with a host of new side effects. First it was the horrible taste left in her mouth by the treatment. This sounds minor, but living with it every minute of the day is excruciating. I think candy turned out to be the best remedy in the end. Once that let up, the sores came. Sarah's mouth was full of sores which made it a serious chore for her to eat, and even drink water. The mouth is full of fast dividing cells, which are the cells targeted by the chemo.

Another place we find fast dividing cells is in our hair follicles. This week Sarah's hair began to fall out. She had it cut shorter to ease the transition, and to curb the exodus that had begun. The doctor predicted that this would get worse over the next couple of weeks. This will be one of the hardest parts for me, and I'm guessing for others as well. Right now, Sarah does not look sick. She looks tired, and perhaps not quite herself, but not sick. Not Cancer. We all recognize the bald head as a sign of a cancer patient. It is beaten into our conciousness. Cancer is everywhere. It's in print and on television, surrounding us in our daily lives. Until now I have been able to filter it out with little effort, but that is no longer an option for me. I now must face the images, and realize what they represent. The hair loss is a sign that the fast dividing cells are dying, which means that the cancer is dying as well, and in this I can take solace.

It's time I explain the title of my post, for I have found new meaning in the phrase. We are definitely feeling the weather, and it is spreading into every area of our lives. This week marks the end of an era. After a long and drawn out battle, we've finally put Sarah's Mercury Tracer to rest. It took two tows and four trips to the mechanic to figure out that "the little car that could", could do no more. It was an inconvenient and expensive addition to an already overly complicated atmosphere, and it is hard not to assign the stress and intensity that we are already feeling to all of the ordinary trials and tribulations that life throws our way.

We tried to look at the positive and think of all the great places that little car has gone, from the Telluride bluegrass Festival to the Florida Everglades for the Phish millennium festival. The Tracer served Sarah well, but in the end too much sugarcoating only causes decay. It gets harder and harder to look on the bright side of things, constantly blinding ourselves in an attempt to block out the reality of our situation. I think that we've settled in to our routine, and learned to find our comfort elsewhere. The calls and e-mails, the facebook messages, the meals and the generous donations, these are are where we draw our strength from when the well starts to run dry. You have all shown us that good can flow like flood waters, just as easily as the bad.

I have two bits of good news that I've been saving for the end of this post. The first is about the $$$ shot. After Monday's blood draw we found out that Sarah's white blood cell count was high enough that the shot is not necessary this time around. This shot has been a great source of pain for Sarah, so it is a welcome blessing to skip it this round. It may come back in the future, but we are very thankful for the reprieve.

The other bit of good news is that our friend Katherine Upshire has offered to organize a benefit event for Sarah, which will help with the mounting cost of this experience. We have decided that a music event is the best fit for us, so we're having a concert and silent auction in early May. Many people have offered their artwork and services as auction items, so if any of you reading this would like to donate to the auction please contact me at fulopx2@gmail.com. I will post with more details about the benefit in the days to come.

I can't express strongly enough our gratitude for all help we have received so far.


Thank you for your love and support,

Dan







8 comments:

Anonymous said...

Ugh...I cannot imagine embarking on this journey with anyone other than you. You are a courageous man! I am eagerly awaiting our new chariot that will take us on as many wonderful adventures as the little Tracer did.

I love you more than words can express!!

xxooxox Sarah

Rebecca Furlano said...

I wish I could be with you guys in person going through all of this. I am on this journey with you. What is old must be replaced by new, it is the nature of things. This too will be old and be replaced by new someday. Love you so much.

<3 Beck

vrb said...

Don't get too sentimental about the Tracer...concentrate on all the good things that come to life with newness and the replacement. I am with Sarah on this one...you will have many NEW adventures with a new car. When you find one, be sure to post a picture.

The hair thing is difficult for ALL women, I think. Hayley's came back about ten times THICKER...everyone is different. But once you get the loss over with, you know that you are on your way to a brand new head of it, so don't get too sentimental about THAT, either. Maybe all of this is a lesson in how temporary "things" really are. But your friend's offer fits right in with today's sermon..."Things" are temporary, but friendship and love are everlasting. The good that she is doing for YOU will keep going around and around...just as the good things that you and your families have done for people in the past will now come around to carry YOU! This is all pretty affirming.

I wish you sunshine and a good week...we had SNOW last night, so be glad that you don't have to shovel RAIN!

Keep up the spirits. The mouth sores will get better!

Love, Vicki and your friends in La Crosse

Anonymous said...

Sarah, I am keeping track of all that is happening and in fact check the blog almost daily. Our Sarah was so attached to our Taurus station wagon that she wouldn't get out of it on the trade in lot. We had to bribe her so I can empathise with you. In the midst of all you are dealing with any change big or small is a BIG deal. All the side effects aren't easy either and hair loss is connected with our presentation and image another big change. Know that you are you no matter what the presentation (easy for me to say) and are loved. Take care
Sue

Toni said...

Hi Sarah, Dan, Marek & Lori;
We are thinking of you all so much lately and wishing we were closer so we could help you in whatever way you needed us to be there for you. But for now, from Illinois we send you positive thoughts and prayers, and hope that they in some way are helping you. It's hard to believe you are a third of the way along on your healing journey; and how lucky you are to have such a wonderful, loving, husband in Dan. I can't imagine the pain you are experiencing right now, but try and stay positive as best you can. You are a beautiful, strong, woman and will come out of this even stronger. Sorry to hear about the Tracer, but before you know it, you'll be crusin' around in a new vehicle and the Tracer will be a distant memory...as will these treatments; both things you will never forget. Hang in there Sarah - we love you!!

Toni

Anne said...

Dear Sarah,

Both Bob and I are saddened by the news of your illness but encouraged by the support you have and the level of treatment you are receiving. We are praying for your recovery and know that God will bless you and your family with many years of health and good fortune. Whatever your beliefs, there is power in prayer and strength in receiving prayers in volume. We keep checking the blog for news and progress reports. Don't fret about the hair loss. I had to have my head shaved when I had a neck fracture when Sally was a baby and had to go into a bodycast, and it does comeback. That is a visual problem that will correct itself. Put your energies toward healing your cancer and being a survivor. I am a cancer survivor and thank God every day for the beauty of each new day. You are blessed with a loving husband, mother, sister, grandparents, family and friends,that are your support system and are there to see you through this. Just be the best patient you can be and rest to keep up your strength.

Love,

Anne

Deb said...

You're doing this with such grace. I am in awe of your attitude, forthrightness, and love for each other. Keep on keeping on and the rest of us will be here for you along the way. Much, Much Love,
Deb, Howie & Ryan

vrb said...

Hi,
I keep watching for an update...I will be gone for awhile for my third hip replacement (HOW can that happen??), but my thoughts will be with you. I hope that Chris and Ryan can figure out a way to get me internet access upstairs for the duration of my healing period. I will go into serious withdrawal if they don't figure it out! Hang in there, and don't forget that many of us are praying for some good news.